One Day at a Time

At times this blog has served as a means of passing along information. That's been the main purpose of all of the updates and details. Now that Koby is home I find myself pondering about the past five weeks. This has become more of a journal to me now. It's a way to share my feelings and thoughts and sometimes even share what is scary and brings sadness to our lives right now. It's actually been a therapy of sorts for us. So the idea of sharing what's in our hearts and minds with others may not make a lot of sense to some. But writing helps us keep things in perspective. It's healing, somehow.

We miss our nurses. Not only because they were good at what they do, or helped keep Koby safe and alive. But they brought us so much comfort. Having them to talk to us and encourage us was really vital. It is difficult without them and we have felt a little extra weight on our shoulders as the reality of caring for Koby on our own is now here. One of our friends sent us this picture.

There's no doubt that the medical staff was directed and lead with the help of heaven in saving our little boy. One of our Nashville friends that now lives in Denver sent us a message that said "If the veil was gone from the NICU, the Angels we'd see there would surely overwhelm us." This is very true and something we can testify to.

Koby is so sweet. We love him. He reminded us that he is a newborn and woke both of us up throughout the night. Not that we are complaining. It's a good problem to have after what has transpired since his birth.

His siblings want to hold him every second and they have to trade off taking turns the entire day.



His feeding tube makes him not very mobile. But it is on wheels so we can move it around the house. This morning the kids were getting ready for school and Koby was on the feeding pump. Sharalee held him in one hand while making breakfast. Then she wheeled the pump to the front door to watch the kids get on the school bus.


Notice how many hands are holding Koby in this picture. We've been relying on others to "hold him" and now it's great that his siblings can take a turn.

The best advice we've received is to take things one day at a time. It can be overwhelming to think about. In the short term we are now just trying to figure out how to run the kids to piano practice and basketball practice and such. When we first heard of his diagnosis questions immediately start racing through your mind. Will he ever walk? Will he have friends? What if he can't learn in school? And as he gets older will he ever go on a date, or one day get married? Will he live with us throughout his life or ever learn to live on his own? I felt a quiet whisper in my mind immediately when these thoughts came to me. "Don't worry. Don't worry about that right now. I will take care of things. Just love this boy. Don't worry about what the future holds. You won't be left alone." We don't have time to throw a pity party. All is well. All is well.

One day at a time.